Your information, handled with care.

When you submit an inquiry or interest form, we collect your name, email address, optional organization or affiliation, the category you selected, an optional message, and whether you asked to receive email updates.

We do not ask for diagnoses, medical records, financial documents, Social Security numbers, or detailed personal histories. Please do not include that kind of information in a message.

Your details are used to read and respond to your inquiry, to understand what families and partners need, and — only if you explicitly checked the box — to send occasional updates about the Foundation’s work.

We do not sell, rent, or trade your information, and we do not use it for advertising.

Submissions are stored in the Foundation’s secure database and are visible only to authorized Foundation administrators. They are not posted publicly and are not shared with other visitors.

If an administrator has configured an internal notification address, a copy of the inquiry may be emailed to that address so it can be reviewed. This is an internal notification only.

Update emails are sent only to people who asked for them. You can ask to be removed at any time by sending a message through the contact form, and your address will be removed from the update list.

This website does not use advertising cookies, tracking pixels, or session recording. The platform that hosts and serves the site may keep standard technical logs, such as requests to the server, in order to operate the service securely.

Inquiries are kept while the Foundation reviews them and for as long as needed to respond. If you would like your submission deleted, ask through the contact form and it will be removed.

The Foundation’s work includes children age five and older, but this website is written for adults. Forms should be completed by a parent, guardian, caregiver, or another adult. We do not knowingly collect information directly from a child.

As the Foundation’s programs and organizational details are confirmed, this notice will be updated so it always describes what the site actually does. Significant changes will be reflected here rather than announced elsewhere.